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What is a Clinical Trial?
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About the NSABP
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A Note About Genetic Testing
General Information About Breast Cancer
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Privacy Policy

Privacy Policy

The National Surgical Adjuvant Breast and Bowel Project (NSABP) takes seriously the privacy of its web site users and the security of their personal information. We have prepared this Privacy Policy to help you understand how we may collect, use and disseminate your personal information as you take advantage of the various offerings on our web site. By using this web site or by applying to become a volunteer in the Study of Tamoxifen and Raloxifene (STAR) you agree to the terms of this policy, as amended from time to time. We ask you to read this Privacy Policy carefully. This Privacy Policy may change periodically, so please check back from time to time. Any questions or comments about this Privacy Policy should be directed to the NSABP webmaster@nsabp.pitt.edu.

This policy describes and explains:
  1. The types of personally identifiable information collected from you and how NSABP may use such information;
  2. The parties with whom your personal information may be shared;
  3. How long your personal information is retained;
  4. Your ability to access, review, edit and/or delete your personal information;
  5. The security measures in place to safeguard your personal information;
  6. Your acceptance of the terms; and
  7. Contacting us.

(1) What information does the NSABP collect? How does the NSABP use my information?

The NSABP gathers from you a variety of information as you take advantage of our services.

Personal Information. The NSABP collects personal information in different ways, including, without limitation, when you register on our site. The information that the NSABP collects may include, without limitation, contact information (name, e-mail address, birth date, gender, zip code, country-specific or other unique identifiers). At the NSABP, we endeavor to indicate that your disclosure of certain information is optional when we do not consider it mandatory.

Generally, the NSABP will use your personal information as follows:
  • We use contact information to contact you when necessary.
  • We use unique identifiers to verify your identity and for use in our record system.
The NSABP monitors the use of its web site and collects aggregate information to monitor the use of the site. No personally identifiable data are collected in this process. Typically, the number of visitors to the site, to each web page and the originating domain name of the visitor's Internet service provider are collected. This information is used to understand the visitor's use of the web site. We may perform statistical analyses of the behaviors and characteristics of our visitors in order to measure interest in and use of the various areas of our web site. We may share with our member institutions and government sponsors of clinical trials this statistical information, as well as the number of users that have been exposed to or clicked on various features of this site.

Any personal information that you disclose to us will be used by the NSABP in accordance with this Privacy Policy. The NSABP will collect personally identifiable information about you when you choose to have a STAR medical facility contact you. By so choosing, you consent to the collection, storing, and processing of your personal information, including information about your health, by the NSABP. Keep in mind that while your personal information is displayed on the screen it is not secure.

Information from your computer. In addition to the collection of personal information, our web site recognizes certain information about your computer, such as the browser, operating system, IP address and home server from which you access the Internet. We keep track of the domains from which people visit our site. Your IP address is used to help identify you, gather broad demographic data, identify trends and statistics, help diagnose problems with our server and administer our web site. We normally do not link IP addresses to any personally identifiable information; however, when we feel it is necessary to enforce compliance with our terms of service or to protect our service, site, customers, visitors or others, we may use IP addresses and other such information to identify a visitor.

Other information Practices. We reserve the right to use or disclose information, as we deem appropriate to help us provide our services, to maintain and operate our web site, or to protect our web site, our systems, or our visitors. Further, in addition to the situations described above, we may disclose visitor information in special instances when we have reason to believe disclosure is necessary to identify, contact or bring legal action against someone who may be causing injury to or interfering with the NSABP's rights or property, other NSABP users or anyone else. We may disclose user information when subpoenaed for government investigations and when we otherwise believe in good faith that the law requires such disclosure.

(2) To whom will my information be disclosed?

The NSABP reserves the right to disclose non-identifying information collected from you to the NSABP's member institutions, clinical trial sponsors, as well as our affiliates. This is a mandatory term of this Privacy Policy that you cannot opt-out of. By using our web site, you indicate your acceptance of this term and acknowledge that your personal information may be shared with such institutions and affiliates, and any entity directly or indirectly acquiring all or a majority of the NSABP's assets.

The NSABP site contains links to other web sites. Links to other web sites are provided as a service to visitors. This Privacy Policy does not apply to those sites. The NSABP does not endorse, sponsor or recommend these sites and does not take responsibility for the data policies or procedures or the content of such linked sites. We are not responsible for the privacy practices or the content of these other sites. You should check the privacy policies of these other web sites when providing personally identifiable information.

(3) How long is my personal information retained?

Your personal information is retained indefinitely.

(4) How can I delete my information?

You may, at any time, request the removal from our database any information we maintain on you by contacting our web site by e-mail at webmaster@nsabp.pitt.edu. We will endeavor to comply with any request to remove your information.

(5) What security measures are in place with respect to my information?

The NSABP cannot and does not ensure or warrant the security of any information we receive from you. You transmit information to us at your own risk. Once we receive your transmission, we try to ensure its security on our systems. The NSABP's policy is to store personal data on a secure server which is password protected and shielded from the outside world by a firewall.

(6) How do I accept the terms of this Privacy Policy?

By using our website, you agree to the terms of this Privacy Policy. If you do not agree with this Privacy Policy or any of its terms, please do not use our site. The NSABP reserves the right to amend this policy at any time. Your use of our web site following the posting of changes or amendments to this Privacy Policy constitutes acceptance of such changes and amendments.

(7) How can I contact the NSABP?

The NSABP welcomes feedback and questions on its web site and this Privacy Policy. If for any reason you wish to contact us, or have any questions about this Privacy Policy or this site, please contact webmaster@nsabp.pitt.edu who will refer this issue to the authorized individual.

This Web site is a product of the
National Surgical Adjuvant Breast and Bowel Project (NSABP).